APRIL
1

Grassroots to Global: Mapping Clinical Care, Insulin Access and Community Support for Type 1 Diabetes in India

Under Phase 2 of the Grassroots to Global Initiative, delivered with Beyond Type 1, HRIDAY is strengthening the pathway from community awareness to quality clinical care for children and families living with Type 1 Diabetes (T1D) across Delhi NCR, Maharashtra and Tamil Nadu.

At the centre of the work is a structured clinical mapping exercise covering specialised diabetes and endocrinology facilities across the project geographies. Facilities are assessed against a common framework capturing paediatric and adult T1D services and Diabetic ketoacidosis (DKA) capacity; availability of insulin types, pumps, glucagon and cold chain; diagnostic capability including HbA1c, continuous glucose monitoring (CGM) and ketone testing; the diabetes care team, including endocrinologists, diabetes educators, nurses and counsellors; patient load and loss to follow-up; the real cost of consultation, insulin and strips to families and their scheme coverage; and existing patient education, injection training, peer support and caregiver engagement. Facilities are also assessed for referral readiness and interest in joining a clinical network and training programme, so that the mapping produces a working referral map rather than a static list.

The clinical mapping is one strand of a wider package of community engagement and involvement work. Under the initiative, HRIDAY has convened a Wisdom Council of lived experience champions and a Scientific Council of senior clinicians, which together review and approve all educational content; co-developed localised IEC resources, now available in five Indian languages and expanding further on the basis of demand from ambassadors; and built a national network of type 1 diabetes ambassadors that has grown from 14 members to 234 across the country, supported by structured onboarding, a central database and ongoing coordination and communication.

A Beyond Diagnosis Train the Trainer programme was also delivered facilitated by the Beyond Type 1 global team together with HRIDAY. Nineteen ambassadors and staff from implementation and grantee partner organisations were trained to use the council-approved resources and to lead awareness and education workshops in their own communities, with regional cascade trainings taking the materials into local languages and settings. Phase 1 of the initiative (April-December 2025) reached over 5.3 lakh people on the ground and more than 8.1 lakh digitally. Taken together, the mapping and this community work connect mobilisation at community level directly to facilities able to diagnose, treat and follow up.

The exercise is deliberately aligned to the RBSK 2.0 guidelines, generating practical evidence on where early identification, referral pathways, continuity of care and family support can be strengthened within existing public health systems, and feeding into national policy engagement on childhood diabetes.

Clinical Mapping Exercise
  • HRIDAY
  • N-25, Second Floor, Green Park Extension
    New Delhi 110016
    Delhi
    India